The new specialist mentioned that during my appointment in August. He was referring to rare diseases or complicated ones, I suppose.
Is that a heartening statement? I implore you; if you wield any power in your life over people that need your services, do not say that to a client. Especially one that will be billed regardless of your capacity for thought. Egads. For goodness sakes, you are billed as a research scientist and scholar.
So, I did manage to make it two months hormone-free and finally went to the lab for some blood tests.
TSH elevated, T4 low ~ secondary hypothyroidism still there
low Estradiol, LH and FSH ~ hypogonadism persists
8am cortisol & ACTH normal ~ woohoo! but without midnight serum & salivary results. I don't want to waste time doing any tests until there is some sort of agreement on what a "valid testing procedure" entails.
fasting insulin level is high ~ 20uU/mL on a range of 0-17
DHEA is low *insert adrenal mumbo jumbo*
RCDW high ~ ?
IPTH is high 80 on a range of 10 to 65, with 45 being a commonly considered high result for people under the age of 60 but a useless result in some senses since the Calcium level is currently pending
Bicarbonate is my only low electrolyte result, which is common for me.
All of that means... absolutely nothing to me! ;) Ok, it probably means something to someone somewhere.
I am not sure which way to go. One of my specialists better start coughing up answers, or handing out more lab slips, or Googling for me, or something...
Once again, it points towards something genetic, endocrine and usually an autosomal dominant trait. Which scares the beejeesus out of me, with two small children.