I'm off to Texas this coming week for a second surgery. This surgeon is more "aggressive" than the first one and I expect that he'll remove half of my pituitary gland. I'm a bit nervous, but like most things medical I try to keep myself from thinking about it until it comes time.
My specialist prescribed Ketoconazole to halt my overworking adrenal glands, I flunked the growth hormone stimulation test, and I have cataracts on both eyes. I'll be happy to be off of the Ketoconazole and replacement steroids. Thyroid tests showed that T4 to T3 conversion isn't working, so there are two meds for thyroid replacement now. I'm a bit insulted that my thyroid has decided to gang up on me, on top of the panhypopituitarism.
Pfizer is working to get the growth hormone meds approved and I can't wait to start on it. So far the diabetes insipidus symptoms are somewhat manageable without medication, and I hopeit stays that way. I'm realllly sick of the constant pee breaks. If you have to think of where the bathrooms are before you make a trip to buy groceries or take your kids to the park, and you aren't pregnant, you have problems. Walking is difficult and I always wonder if I'll get shot looks for being lazy if I were to grab a motorized chair in the stores. I haven't done it yet. I'm too chicken. Instead I plod along and sweat through my clothes, my hair soaked. I don't know why I care more about what people think than how I feel.
Regarding surgery: If the tumor wasn't right up against the ICA and showing on my field vision tests, then I'd prefer a good ol' Bilateral Adrenalectomy. *sigh* Maybe radiation and a BLA are in my future, but not just yet.