tag:blogger.com,1999:blog-35453676.post116097213956103891..comments2023-10-10T02:28:26.896-07:00Comments on The Cushing's Disease Journey: Carney ComplexLisahttp://www.blogger.com/profile/15508518592917445895noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-35453676.post-78162990956611284682009-07-07T13:45:58.905-07:002009-07-07T13:45:58.905-07:00Hi Lisa,
I don't quite know where this message...Hi Lisa,<br />I don't quite know where this message will end up. I spotted your post about carney syndrome in 2006, i know it's probably rather late but i was treated at the NIH in washington for Carney's. They have a protocol there under Dr Stratakis and i would imagine you can still be accepted through the internet. As there are less than 1000 people world wide they are very interested in checking people out. I have briefly read your blog, you've certainly been through it!! Feel free to contact me, i am one of the few Carney kids (now 36), minus adrenal glands(no longer have cushings), couple of strokes and heart surgery twice. Very content at the moment, a diagnosis was the best medicine and my body is being good.<br />Any more info feel free to contact me,<br />Take care<br />Francesca, (UK)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-35453676.post-33595646502200257882009-02-15T12:46:00.000-08:002009-02-15T12:46:00.000-08:00Can any ole' cardiologist dx Carney Complex....hav...Can any ole' cardiologist dx Carney Complex....have they even heard of it?Anonymousnoreply@blogger.com